The Foundation for Children with Microcephaly has been created to help and inform parents
and families of children who have been diagnosed with Microcephaly, Lissencephaly,
Polymicrogyria and other closely related neurological disorders.

If your child has just been diagnosed, you have a million questions and thoughts running
through your head. It gets really frustrating when no one has the answers to any of your
questions. We are here to help! We can put you in contact with other parents that have
been or are going through the same things you are.

Microcephaly means small (micro) head (cephaly). It is a neurological disorder where the
head circumference is less than it should normally be in an infant or a child. The condition
can be present at birth or develop within the first few years of life. Most parents do not
know why their child has Microcephaly may never know the cause – even with advanced
genetic testing. The most difficult thing that we have found is each and every case of
Microcephaly is different. Some children have mild to moderate delays, while others have
severe delays. Most of the time there is no way to know how your child diagnosed with
Microcephaly will develop. In some cases delays are apparent right away, and in others
delays won’t show up until after a year old. So the only thing that we, as parents, can do is
just try to help our child progress, enjoy every moment with your child and take life day by
day – trying not to worry about all of the unanswered questions (which is much easier said
than done).

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