What does it mean to live your best life? For a child with disabilities, living your best life happens outside of the clinic.
The “F-words” of childhood disability include the following: fun, function, family, friends, fitness and future, according to the CanChild’s Foundation. Both Ani’s and Scarlett’s parents recognize that life experiences balance out the need for therapies and make sure the two girls participate in a variety of activities that include many of the “f-words’ ‘mentioned.
Fun — With her specialized adapted equipment, Ani and her family take trips to the zoo, aquarium and farm — all areas that may appear accessible. She is given the opportunity to be an active participant — standing in her stander — dressed up as a dinosaur for Halloween and playing mini-golf.
Family, Future & Function — Valerie Kessler SLP/CCP at UCP of Greater Cleveland developed “More to Say” education modules for parents — and one is focused on play. Family members play together through adapted art, cooking, board games, dancing, music and more. This also provides a space for parents and grow their networks, ensuring lasting quality experiences as their child grows.
Friends & Fitness — Scarlett enjoys swimming with her friends in her pool at home, using her adapted float. Also, Scarlett’s mom started a Girl Scout troop specifically for children with special needs. This group has created social and educational opportunities for the Girl Scouts and a network for moms.
While the care team in the clinic prioritizes a child’s motor, play, communication, and activities for daily living skills, participating in meaningful experiences with family and friends outside of the clinic offers the best opportunities for these kids to live his/her best life.
